“I still hear the sound in my ears of a great many people talking or making a noise. It is almost unbearable in the long run.” – Vincent van Gogh’s Letter 741, Letter to Theo (February 1889) When M told me that the van Gogh immersive experience was on during my birthday, sirens went off… Continue reading The Sound of Silence
Tag: chronicdisability
Disabled people don’t owe you an explanation
I was recently asked to speak at a conference on the work that an organisation I’m associated with is doing. The theme was ‘How effective communication strategies are needed to combat air pollution’ and I talked about the inclusion of marginalised voices in these spaces. It was a big deal for me because I’m not… Continue reading Disabled people don’t owe you an explanation
Mirrors, Meniere’s, Me…
There’s an adage about how we learn who we truly are when faced with difficulty. Of course, there is truth in this, but we don’t really talk about the flip side; how we face a difficulty is determined by where we are in our lives at that point. This past year, I’ve often wondered about… Continue reading Mirrors, Meniere’s, Me…
Self-pity
Okay, so maybe some amount of self-pity is inevitable. I’ve tried resisting it. In the initial days of experiencing this chronic disorder, I was overwhelmed by fear and anxiety of not knowing what was going on with my body; of losing control and truly wondering if I was dying. The effort it took to get… Continue reading Self-pity
